This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the "Finding Balance Intervention" for bereaved caregivers; the "Reclaiming Yourself" tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach. The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.
Chapter 1. Overview of Hospice Palliative Care in a Community and Home Setting (theoretical and conceptual models, populations, ages, diseases, transitions, bereavement support) Lorraine Holtslander, Shelley Peacock and Jill Bally Chapter 2. The Formal Caregiver Perspective Kelly PenzChapter 2. Global Perspectives from the UK Agatha Ogunkorode, Lize Maree, Rhoda MacRae, Margaret Brown, Debbie Tolson, Mary Ellen Walker Chapter 3. The Family Caregiver Perspective Sherrill Miller Chapter 3. Global Perspectives from Europe Agatha Ogunkorode, Lize Maree, Rhoda MacRae, Margaret Brown, Debbie Tolson, Mary Ellen Walker Chapter 4. Global Perspectives: Nigerian Context Agatha Ogunkorode Chapter 5. Palliare (UK/Europe) Elaine Stevens, Stuart Milligan Chapter 6. Global Perspectives from Canada Chad Hammond, Sharon Baxter Chapter 7. Global Perspectives: New Zealand Karyn Bycroft, Rachel Teulon Chapter 8. Global Perspectives: US Cindy Tofthaghen 9. Global Perspectives: Conclusions Mary Ellen Walker Chapters 10. Finding Balance Lorraine Holtslander Chapter 11. Keeping hope possible Jill Bally, Meridith Burles Chapter 12. Reclaiming Yourself Shelley Peacock, Melanie Bayly Chapter 13. Living with Hope Wendy Duggleby 14.COPE intervention for caregiver Cindy Tofthagen Chapter 15. Dementia Rhoda MacRae, Margaret Brown, Debbie Tolson Chapter 16. Heart Failure Alexandra Hodson Chapter 17. Older Adults with Cancer Schroder Sattar Chapter 18. Long Term Care Genevieve Thompson, Shelley Peacock Chapter 19. Prisons Meridith Burles, Cindy Peternelj-Taylor Chapter 20. Pediatric Home Care Jill Bally, Nicole Smith Chapter 23. Looking ahead Lorraine Holtslander, Shelley Peacock